Marcia Boyle is the president and founder of the Immune Deficiency Foundation (IDF). She has devoted her life to helping people diagnosed with primary immunodeficiency diseases (PI), which are a...
Champions of Change: Precision Medicine
White House Champions of Change for Precision Medicine will honor the work being done by patients, researchers, innovators, and advocates who are advancing our understanding of health and disease by harnessing data to take account individual differences in people’s genes, environments, and lifestyles into account to improve patients’ health.
Hugo Campos is a data liberation advocate and leader in the e-patient movement. Hugo is an Emeritus Member of the Stanford Medicine X ePatient Advisory Board; member of the Stakeholder Advisory...
Dr. Elizabeth Gross Cohn is an Associate Professor of Nursing and Public Health, and the Director of the Center for Health Innovation at Adelphi University. Using a community-engaged approach, the...
Amy Gleason began her career in nursing and then discovered a passion for technology. She recognized that technology can improve healthcare, and spent years building and implementing electronic...
Amanda Haddock is president and co-founder of Dragon Master Foundation, a nonprofit that strives to speed biomedical discovery by developing and implementing tools and technology to empower cancer...
Emily Kramer-Golinkoff, a 30 year old with advanced stage cystic fibrosis and cystic fibrosis-related diabetes, is Co-Founder of Emily's Entourage, a 501(c)3 that raises funds and awareness to...
Howard Look is the founder and CEO of Tidepool, a non-profit organization with the mission of reducing the burden of managing Type 1 Diabetes through their open source software. Tidepool works...
Dorothy Reed formed the Sisters Network of Central New Jersey (SNCNJ) in 2000 with three other breast cancer survivors, because of the absence of local support or culturally sensitive resources...
Anish Sebastian is the CEO and co-founder of Babyscripts Inc. Babycripts is the leading mobile therapeutics company in pre-natal care. Under his leadership, the company has raised more than 2...